About the Company
ITF Therapeutics is the U.S.-based rare disease division of Italfarmaco S.p.A., a private multinational group headquartered in Milan, Italy. Established in 1938, its mission has been to improve patient lives and overall well-being through pioneering research & development, high-quality production, and global marketing of branded prescription and non-prescription products.
In January 2024, Italfarmaco launched ITF Therapeutics as a new division in the United States with a focus on the development and commercialization of products to treat rare diseases including Duchenne muscular dystrophy (DMD), a rare and severe form of muscular dystrophy. Highlighting this commitment, ITF Therapeutics successfully secured FDA approval in March 2024 for Givinostat, the first nonsteroidal medication approved to treat all genetic variants of DMD in patients six years of age and older. Givinostat is a histone deacetylase (HDAC) inhibitor that has shown potential in reducing inflammation and fibrosis in muscles, thereby slowing the progression of the disease.
The Role
ITF Therapeutics seeks a Patient Advocacy Operations & Engagement Sr. Manager, DMD to lead operational execution of patient advocacy initiatives and support regional patient advocacy engagement efforts in the area of Duchenne Muscular Dystrophy, a rare, genetic, neuromuscular disease. You will play a critical role in the operations & management of the Patient Advocacy team. You will also actively participate in key internal and external Patient Advocacy programing. Engagement activities include in-person & remote community interactions with regional advocacy groups, gathering insights from and sharing essential information with patients, caregivers, healthcare professionals, and relevant stakeholders to help improve the lives of people with DMD.
Primary Responsibilities:
Required Skills:
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